I’m Baaaaaaaaack!!!!

It’s been four months since my last blog post. I finally got my New Nintendo 3DS for Christmas. I was so happy and excited that I got it, because I bit my last one and it was completely broken, so I got a new one. I’m glad I now have it because I get to take some sunrise, sunset and cloudscape pictures. I had a four-week internet outage, and I was supposed to write a blog on the second week of February, however, the plans fell through due to the four week internet outage I had. As an autistic adult, it’s hard for me to keep myself calm if an internet outage lasts for four weeks or more than that.

I haven’t been feeling well lately. I’m dehydrated, so I’m supposed to be drinking lots of water. I now take some fish oil and spash only a little bit of juice in my water. I’m no longer allowed to drink any juice.

Anyway, so much has happened since the last blog post I’ve written. I have just recently made some springtime decorations. It was fun and I enjoyed doing that. I also have been watching Sesame Street late at night to help me go to sleep at nighttime. I started watching international versions of Sesame Street in January, and it was so much fun to watch. I learned different languages, and it was really cool to see Muppets from a different country, especially a foreign country.

Now that I have my New Nintendo 3DS, I can watch Sesame Street on YouTube every night before I go to sleep, and I also watch Muppets Tonight every Sunday to help me stay calm before I go to church. I love to watch videos on Dailymotion, Vimeo and YouTube. I like watching the Judy videos, the Samika Vlogs and the JakeBoys vlogs. I also like to watch crafting tutorials on YouTube.

I got a Sesame Street DVD that was released in February. I’m happy that I got it too because I really wanted it, so when Mom and I went to WalMart on the last week of February, I got it and watched it twice in a row on the day I got it. I’m really excited to be getting another Sesame Street DVD, which came out a couple of weeks ago.

I had a meltdown one day in either January or February, and my younger brother told me to shut up when I had the meltdown. I was so mad at him for doing that. He could have at least been a little more supportive and asked me what he could have done to help me. It made me sad that he did that. I wish that people would understand me better, but sadly, they don’t. I’m misunderstood by people and it’s really not fair. Whenever I have a meltdown I always get told to shut up, and people dismiss my feelings like I don’t matter to them or something. It hurts. It breaks my heart to have to deal with all the mistreatment and ableism.

But I am so glad that there are some people that understand or are willing to understand what it’s like for me to be autistic. I do wish that people could walk a mile in my shoes while I tell them my story. I’m still here. I’m not “missing,” a tragedy or a burden. I have a voice and a story to tell. Don’t judge, criticize, mistreat, abuse, make fun of or ridicule us autistic/disabled people. We autistic/disabled people are human beings. Walk a mile in our shoes and listen to our stories. Listen to us. Because it is nothing about us without us.

45, Autism Speaks & The Future of Our Activism

Autism Speaks Hurts. Real People Speaking.

We want to take a moment to acknowledge all the progress we have made since our grassroots efforts began. As one of our founding organizers has said:

“This is not just a boycott, this is a civil rights movement.”

It is important to see our progress but we must remember that it’s equally important to keep the pressure on Autism Speaks and their financial sponsors. We must continue to speak out against hate, ableism and fear. For over a decade, Autism Speaks has dominated the conversations about autism while ignoring the needs and wishes of the autistic community.  They have created an environment where we are feared, where our civil rights and autonomy are ignored, where we are told that we are unable to speak for ourselves as Autistic people. They have made this common place. Is it any surprise that our current president has adopted so much of their…

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Not In Love With Julia

As a fan of Sesame Street and the Muppets, I agree with this. Sesame Street needs to realize that there’s nothing wrong with being autistic.

Erin Human

Everyone might be tired of hearing about Sesame Street’s new autistic muppet by the time I post this, but before I wrote up a full review I had to make my way through all of the materials at the “Sesame Street and Autism” site. I watched all of the videos, either when the kids weren’t around or with headphones while they were otherwise occupied, because I wanted to screen them first before I let them view of it – and, yes, it is weird to have to screen Sesame Street, of all things, for harmful messaging, but such is the state of the mainstream dialogue on autism that I knew there were likely to be some things I would not want my kids to see or hear. And there were.

What is Sesame Street and Autism?

First, a brief explanation of what Sesame Street and Autism is and isn’t. There’s been…

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Thanksgiving Plans and Update on My Right Leg

Today is Thursday, and it is a week before Thanksgiving. I’m so excited for Thanksgiving because I get to watch the Muppets on the Thanksgiving Day Parade on my local NBC station, and I also get to watch the Thanksgiving parade on my local ABC station, then I get to watch Mr. Peabody and Sherman on Thanksgiving night at midnight. I’m also looking forward Thanksgiving Eve because at 6pm I get to watch The Muppets before Thanksgiving Eve service. The calf of my right leg is feeling better. There’s not a black and blue mark on my leg anymore.

I didn’t go to choir practice because my friend’s mom is sick, and my mom didn’t feel like taking me. So I took a day off and watched the Thanksgiving episode of Speechless. When I saw that show I thought it was pretty awesome. I fell asleep early last night because I was so tired. It is going to be warm out on some of this weekend. On Tuesday I got to take pictures of the sunset. It was really beautiful, even if it wasn’t fiery like I thought it was. I hope that tomorrow night’s sunset is fiery, same as tonight.

Again, I’m really excited for Thanksgiving this year, because then I get to eat turkey, potato filling, corn, green beans, mashed potatoes, and cranberry sauce. This is going to be the best Thanksgiving ever. I think my family will be eating out this year. This means that I will watch the Macy’s Thanksgiving Day Parade at 2pm, and the Dunkin’ Donuts parade at 8:30. They have repeats of the Macy’s Thanksgiving Day Parade at 2pm every Thanksgiving. I can’t wait until Thanksgiving Day.

I got my essays published for Autistics Speaking Day and Autistic History Month. I’m so excited for that, too, because this year is my first year of participating in both events, and I’m very glad I participated in both. Because we as autistic people need to have our voices heard. As autistic people, we are valid. As autistic people we need people to realize that it’s okay to be different and that it’s not okay to silence, dismiss, bully, tease, torture, gaslight and murder us. We as autistic people need to be loved and understood. As autistic people our voices need to be validated, because people need to realize that we have feelings and they need to validate our feelings, too.

I can’t wait until Thanksgiving Eve service, because then I get to sing the anthem with the choir, and I get to share my testimony with the rest of the congregation. I like to share my testimony with the rest of the congregation, because it makes me feel glad to be a part of my church. I hope I get to go this year because I never got to go last year. I was really disappointed that I didn’t get to go last year but I’m okay now.

Tonight I will be watching football, drawing, blogging and making some crafts. I’m tired, and lunch will be soon.

I Am Autistic, and I Am Valid #AutisticsSpeakingDay2016

This is my first Autistics Speaking Day essay. I wanted to do an essay last year, but my computer didn’t work and it had viruses on it, so I couldn’t use it. I also tried using my Nintendo 3DS but unfortunately, that didn’t work either, but I am thankful my computer is back up and running again, in time for Autistics Speaking Day.

Today is Autistics Speaking Day. I am glad that I’m participating in this day, after weeks of having no computer, which is now fixed. Autistics Speaking Day is important to me because as autistic people, we are awesome. We are the coolest people that you’ll ever meet. We are tender-hearted people who are valid and have feelings. We don’t lack empathy, and we have a sense of humor.

Unfortunately, people seem to want to silence our voices. It makes me sad that there is so much hatred for us. They don’t even realize that we are human beings. They dismiss our feelings, they torture us, tease us, mock and ridicule us. And they also abuse us and even worse, they murder us. They even make us drink chlorine to poison us. The way society treats us autistic people just hurts my heart. They even tell us to shut up whenever we autistic people speak. And they demonize us, thinking that we are dangers to society. But we autistic people will never be a danger to society. Sometimes we draw, paint, and do ceramics. Sometimes we build stuff out of cardboard boxes or cardstock paper.

I believe that people need to start caring about disabled people, and that includes us autistic people. People need to realize that we autistic people have value, and our feelings are valid. People need to start treating autistic people with love and acceptance and not try to hurt them with words, actions, MMS or chlorine. As autistic people, we need to be treated with unconditional love. We need to have our voices heard. Sadly, our voices aren’t heard and we are treated like we are a disease, burden, tragedy, a broken appliance, and treated like mosters too. But we are neither of these. I am not a curse. I am not a tragedy, a broken appliance, a monster or a burden. We are not these at all. We are never tragedies, burdens, monsters, curses, or broken appliances. We are human beings just like everybody else and we need you to love and understand us. Please don’t be quick to judge us, condemn us, mock, ridicule, torture, or spit on us. Because if you do, you take away our voices. You take away our dignity. You take away our rights to be ourselves.

I am very sad that there is a lot of ableism that goes on in this world. So many autistic people are getting locked in nursing homes and institution, and others are getting murdered or bullied by so many neurotypicals. It hurts my heart. I remember hearing about a young autistic man who was killed by police officers who wouldn’t understand him. I also remember hearing about Issy Stapleton being abused by her mother, Kelli Stapleton. The world says that we are violent and dangers to society, but that is completely false. We autistic people are good, kind people. We are NOT dangers to society at all. The world, unfortunately, wants us to believe that way.

We autistic people need people to listen to us when we speak to them. We need people to stop talking over us and instead talk to us. People ignore us and say that we’re better off dead. But we are not better off dead. We are still here whether people like it or not. People need to realize that we need to be loved and understood. It hurts my heart when people mistreat us constantly.

When I was on a Christian page and a Christian told me that I’m not autistic, I felt like they were talking over me. I felt like they made me feel unwanted, and unloved. Another Christian told me to claim my healing and that they were going to pray my autism off of me. These things they told me were hurtful. I hated what they said to me, and so I left the page and didn’t want to come back. I believe that churches need to start caring about us autistic people, too. And churches need to realize that we autistic people need to feel welcomed at church. I wish that more churches would do this, because we autistic people are human beings, not tragedies, burdens, broken appliances, monsters, demonic people, or people who are better off dead. Churches need to treat us with love and acceptance. Churches need to stop demonizing us and dehumanizing us. I’ve been bullied on the Christian page on Facebook which is talked about above.

To the people who have an autistic/disabled friend or relative, please listen to us. Please love and understand us. Please know that our feelings are valid and we are also valid. Please don’t judge, condemn, tease, torture, ridicule, mock or throw us in the garbage can. We are not trash, we are human beings just like you. We have a voice, and we have a story to tell. Please take the time to listen to our stories before you eliminate us and judge and condemn us. Because we are still here, we are not going away, especially when society tells us to go away. We are not wrong. We are the right fits.

I Hate the Hot Weather and It Should Go

These are posts below that are made by me, because I am an autistic adult who has sensory issues with the heat. I have written these posts from this afternoon to tonight.

3:58pm

“Seriously I can’t wait until the weather is cooled down. I hope there’s no more temps this year that feels like 80 degrees.”

4:03pm

“I am glad my window is opened for the day. Soon it’ll rain, then there will be much cooler temperatures. I really hate that it feels like 80 degrees. I am not a fan of this type of weather.”

4:33pm

“I hope the skies open tonight. I want to see the sunset.”

5:12pm

“My room is an oven, and I am still hot. I hate when my room is a desert island. Please God, bring me some cooler air…”

5:15pm

“I wish Mom could put the air conditioner back in my bedroom. I am boiling and my room is super-hot right now. It’s hotter than a sauna in my bedroom!! This is super frustrating for me…”

5:23pm

“Feeling sleepy like I did this morning. I need to go to bed early tonight.”

5:31pm

“I’m thankful that the temperatures are getting lower. I feel like I should take a nap right now. The Weather Channel’s website says it’s 69 degrees. I’m still waiting for my room to get cooler. At least my hair is up in a bun. Can’t wait until the temperature is at least about 59 degrees.”

5:37pm

“I can feel the cooler air now. Wonderful!!! 🙂 🙂 :)”

5:42pm

“I will have to keep my window open if I want more cooler air. I’ll shut the window later on tonight. I ate meatloaf and corn for supper tonight. I am getting even more sleepy than I am now. On Tuesday I will get started on my Autistics Speaking Day blog post. I’m glad that my computer is running well and has no viruses on it. I have an AdBlocker thing in my Google Chrome browser so that nothing ruins my computer. I’m happy to be able to finally participate in Autistics Speaking Day.”

5:47pm

“I won’t be able to watch the sunset tonight because of the thunderstorm, but tomorrow night I will, and I’m glad about that.”

5:58pm

“I’m glad that it’s getting cooler because of the rain. I’m thankful that my room is cooling down nicely. I don’t like when it’s so hot in my room, but I’m glad that it’s cooling down.”

6:05pm

“Woohoo!!! The temperatures are getting lower again!!! 🙂 🙂 🙂 :)”

6:12pm

“Workin’ on the temperatures, goin’ down down down…lmbo!”

6:20pm

“I’m glad it’s gonna be cooler outside tomorrow. I won’t have to feel the hot air. I will be taking a nap.”

8:19pm

“I had a good nap. It feels good in my bedroom now that it got cooler. I can’t wait until tomorrow because I get to feel much cooler weather. I felt upset because I was really tired and because I knew it was gonna be hot out today. I think that this night is so much better than this morning. This morning was rough for me. I had a much better afternoon and am currently having a much better evening. Tomorrow will be a much better day for me.”

8:52pm

“I’m so glad that it’s nighttime right now. The hot weather today made me sad and frustrated. I can’t stand being in the heat. I wish I could go to Alaska where it’s cooler during the hot months.

The Weather Channel says that it’s 59 degrees, which is a good thing. My room is getting cooler. I’m thankful for that.

Like I said – I’m so glad that I have my window open tonight. It was super hot today.”

9:03pm

“Yeah, 80 degrees and over is way too hot for me!”

10:03pm

“Here are the places that I would go to if I had a car or if Mom took me:

~ The Leesport Farmer’s Market
~ Chincoteague Island
~ Pied Piper Diner
~ O’Grady’s Family Restaurant
~ Arner’s Family Restaurant
~ Kemp’s Catering
~ Hollywood Casino
~ Sands Casino
~ Smokey Bones Restaurant
~ The Home Town Diner
~ Route 61 Diner
~ Heister Lanes
~ Aquabilities

I used to go to these places, a few of them I went to when I was in school. I wanna go to all of these places again.”

Meanwhile I reposted some fall pictures and then I reposted sunset pictures on two different facebook pages. I also drew a picture of my favorite Muppet named Walter, playing in a pile of leaves. I am hoping that tomorrow is a much better day, because I had a really rough morning. I was so sleepy that I bawled my eyes out through half of the church service. I ended up getting hurt and I have hurt my right upper calf of my leg while walking towards my chair in the choir pit.

Sometimes, there are days when I hurt so much inside. Today was one of those days. There are also days where I can’t enjoy myself, or my days. Today was one of them. I really hope that tomorrow is a better day for me.

The History of My Autism

Hi, my name is Christy. I am an autistic adult, and I turned 29 years old in August. I am going to tell you my autistic history.

My story opened on October 12, 1987. I became very sick with menengitis. I have heard of many people that died from it. I had to go to the hospital to get some medicine for it. That day, on October 12, 1987, I was diagnosed with autism. I didn’t know I was autistic until I was in sixth grade.

In seventh grade, I went to see a therapist who introduced me to Donna Williams’ books. She read to me pages of a book called Nobody Nowhere. I was really fascinated with that book. I really liked it and I want to get it one day. I was intrigued by Donna’s story, and loved learning about her. I have seen her brilliant artwork and read her awesome poetry. She is a really awesome author, poet and artist.

In high school, I participated in Special Education classes for three and a half years and went on the disability school bus. I really enjoyed going to restaurants and swimming at Aquabilities. The worst part about it was the way my Special Ed teachers acted towards me. I hated that they rolled their eyes at me and yelled at me everytime I made a mistake.

I attended speech class every year as a student of my school that I went to. I usually attended speech class alone, with a friend, or with my Special Ed classmates. I attended IEP meetings in middle and high school. In speech class I was scolded for being late which I didn’t like at all. I was not happy about that because I don’t like being scolded in the first place.

My mom signed me up for SSI and got me health insurance through Gateway in 2005. I got denied several times for health insurance, but then Gateway accepted me. I’m glad that they accepted me, because none of the others really wanted to bother anyway.

In 2006, I graduated from high school. I was really glad to get out of there because I was always so tired after school, that I fell asleep in my bedroom. I lived with my grandmother from then at the time of her death in 2011. My grandmother and I used to go on trips, eat out at restaurants like O’Grady’s and Route 61 Diner (my personal favorite), and shopping at Big Lots. In 2010, she and I moved back to my hometown. I liked where she and I used to live because the pine smell was always in the house. It always smelled like pine whenever I was there. When she went into the hospital in 2011, I went to my mom and stepdad’s house to live there.

In 2012, I joined the choir at Grace Bible Fellowship Church, and it was a lot of fun the first year that I was in it. I have been attending GBFC since 2010, and it’s such a good church. The pastor is accepting of me, and so are my fellow choir members and fellow members of my congregation. They are a great group of people and I love them dearly.

Fall Is Here, And I’m Glad It Cooled Down

I’m so glad that fall is here again, and I’m glad that it cooled down, too. I always hate it when it gets hot out. I am getting excited for the coming months. A couple of weeks ago I had a pumpkin spice latte from at Turkey Hill. It was delicious, and I’m glad I was able to get one, because Mr. Kiffer took me to get it. I think that this fall is so far the best one ever.

Now that the weather is getting cooler, I’m gonna be able to go to sleep all night. I’m really glad about that because I really don’t like sleeping in the heat. 80-90 degree temperatures are too hot for me. I like it better when it’s from 60-80 degrees out. I can’t wait until I get a New Nintendo 3DS so that I can take pictures of sunrises and sunsets so that I don’t have to use my digital camera for them. Every day I love watching the sunsets and taking pictures of them. On some days, I just take pictures of both the sunrises and sunsets.

I woke up this morning to the wonderful news that Muppet Babies is gonna be coming to Disney Junior in computer animation format. I am so excited about that too. I can’t wait until I see what it looks like in computer animation format. It’s gonna start in 2018, but I hate waiting that long, so I am gonna be watching Muppet Babies sometime this weekend.

My leg is hurting but I’m praying that it’ll feel better. Today was a great day. I had a wonderful time in choir practice. I loved singing all the songs with my fellow choir members. I seriously love my fellow choir members and choir teacher Harriet. They are all so kind and caring. It makes me feel glad and that I’m not alone. That’s what I love about going to choir practice.

I dare you

Michelle Sutton

I wrote this and published it on my old blog in November 2014. A year has passed, and I wish I could say that since then there has been no more news of violence against Autistic and otherwise neurodivergent and disabled children by their parents and carers. The fact is there has been story after story of parents who are convinced their imperfect child is the reason for all their woes, and so they act in unspeakably horrific ways toward them. The fact is, the media is still telling us all to feel sorry for this parents, rather than the victims- their children.

So, today, I am sharing this old piece of writing with you. Because nothing has changed.

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When Do We Get to Be Autistic?

Reblogging this because this is so well stated, and applies to me, an autistic adult. We have a voice and a story to tell. People need to listen to us. Our voices matter.

Erin Human

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Image is a yellow/blue watercolored background with the text: I have been congratulated for “overcoming autism” : a well meaning gesture that means nothing at all. For a time I thought this was applause for having the ability to pass, but I have learned that it’s code for “we expect you to act normal now and anything that you can’t do we will consider a personal failing.” – eisforerin.com

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I’m seeing a new therapist and I’ve told her how much I like to write; last week I told her that I haven’t blogged in a while because I haven’t had the time, but this morning I told her that I’ve realized I am not writing because I don’t know what to say.

She told me that it’s important to keep doing this so that I have a voice.

So I’m going to try to say some things.

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I…

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